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The Benefit

  • All participants will be given a gift card after enrollment in the study and completion of the baseline questionnaires. They will receive another gift card of $25 at the end of the study.

  • All participants will receive a transition newsletter approximately every 4 months containing resources and information regarding the transition process.

  • If randomized to the patient navigator, the participant will receive personal help and guidance during their transition from pediatric to adult care.

  • Usual care will be continued throughout the study from health care providers.

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